Technology for people with Motor Neuron Disease

This paper presents recent case studies of technology prescription for clients with Motor Neuron disease, with a specific focus on voice output communication devices. Even though each person is unique, there are specific challenges in prescribing and implementing technology within this. Often, clients are referred for services at a late stage in their illness when physical change and deterioration may be rapid. Therefore a communication system must be able to adapt to the person's changing needs. However, clients may be unwilling to accept options that allow for more significant disability as it is perceived as slow or cumbersome. Appropriate positioning of equipment can also change dramatically over time but again, users may be unwilling to change. In South Australia, a significant barrier is the lack of funding and therapy support to this client group. This compounds the problems already identified as opportunities for ongoing support are severely limited unless clients have the personal resources to employ private therapists. At a time when there are many other medical and physical necessities, introduction of new technology may not therefore be a high priority.

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